Patrick Quinn, co-founder of the Ice Bucket Challenge, has died of ALS at the age of 37. That well-known campaign, which went viral in 2014, raised a total of more than 220 million dollars (185 million euros) for medical research into the disease.
It was Patrick Quinn’s Facebook page that announced his passing. “It is with great sadness that we have to share Patrick’s death early this morning. We will always remember him for his inspiration and courage in his tireless fight against ALS, ”it read. Quinn turned 37. Seven years ago he was diagnosed with ALS.
Amyotrophic Lateral Sclerosis (ALS) is an incurable neurological disease in which the motor nerve cells in the spinal cord, brain stem and motor cortex of the brain die. After some time, patients therefore have to deal with paralysis and respiratory problems. On average, people diagnosed with ALS live another three years. Barely ten percent are still alive ten years after being diagnosed.
Ice Bucket Challenge
The disease received extra attention in the summer of 2014 due to the Ice Bucket Challenge. The purpose of that challenge was to pour a bucket of ice water over you and make a donation to an ALS organization. Then you were allowed to challenge others who had to do the same.
The Ice Bucket Challenge was made popular by Patrick Quinn and Pete Frates, who also passed away from ALS last year. They saw a video of golfer Chris Kennedy doing the action and decided the challenge go viral.
220 million dollars
This worked better than expected and the number of donations for research into ALS reached record highs. In total, more than 220 million dollars (185 million euros) has been raised, according to Reuters. The research that has been funded with it has yielded many important discoveries in the fight against ALS.